You don't have to navigate this alone.
Whether you're newly diagnosed, caring for a loved one, or living with an isolated lymphatic malformation or complex lymphatic anomaly, we're here to help you find clear information, trusted resources, and a community that understands.
If you have questions or aren't sure where to start, reach out. We'll help connect you with the support, guidance, and resources you need.
Peer-to-Peer Program
Living with a complex lymphatic anomaly (CLA) or an isolated lymphatic malformation (LM) can feel lonely. Connecting with someone who truly understands can make all the difference.
Our Peer-to-Peer Program brings together adults living with a CLA or isolated LM and parents or caregivers of children with these conditions. After completing our Peer-to-Peer Matching Form, we'll match you with someone who shares a similar experience, helping you build a connection rooted in understanding and support.
Every connection is unique. Whether you prefer a single conversation or an ongoing relationship, you and your match can decide what works best for you.
Before joining, please take a moment to review our Program Guidelines. They help create a safe, respectful, and supportive experience for everyone by outlining expectations around confidentiality, shared experiences, and mutual respect.
Online Groups
Facebook Support Group for Complex Lymphatic Anomalies
For adult patients and the parents of patients under the age of 18, we maintain a private Facebook group. This group was created as a place where patients and parents can share experiences. This group will not show up in searches and you must be an approved member.
To join, please send a request to support@lgdalliance.org.
